Saturday, May 18, 2013

May 1, 2013

Wednesday May 1, 2013


My phone rang at 5:45 am. When I answered I could hear Tyler crying hysterically. He had just left his house for his third day at his new job. He told me in between sobs that he thinks he is going crazy and he doesn't know what to do. I asked him if he was okay and he said he was driving to Kingsley to meet his boss, but he can't seem to pull himself together. When I asked him if he could work, he said he didn't think so. I told him to please come to my house and we can figure things out together, and offered to call his boss for him. He was appreciative of that and gave me the phone number. He said he was okay to drive, but I offered to come get him anyway.

We hung up and I called his boss who was very understanding. Tyler showed up about ten minutes later and I gave him a big hug. He told me that his roommate was sleeping on the couch and Tyler had woken him to make sure he would take care of the dogs today. The roommate immediately yelled at Ty, telling him to stay away from him and never talk to him or else he will come off the couch swinging. Tyler has no idea what is going on with his roommate. In the past few days, Ty has found 2 of his friends a good job - which they didn't show up for on the very first day- and they are avoiding him at home and not returning any of his phone calls or texts. This is all out of the blue and Tyler has no idea why. It's extremely hurtful to him because this is supposed to be the best friend he has here.

I asked Tyler if he could stick it out like he had done before and work it out, and he said no way. He was tired of all the drama. He just wants to be by himself, change his phone number and become a recluse. What he really wants to do is move out of the county, or at least to another state, but he realizes that's not possible.

We sat at the kitchen table and worked out his finances. I then hopped on craigslist.com and looked for places to rent. I didn't have to look far....there's not much available in the backwoods of Northern Michigan. I found two places - one about 35 minutes south, and one only four miles away. It had no picture, but the price was right. The house address was right in the ad, so we decided at 7:30 in the morning, to drive by and check it out.

The house was adorable! A little 2 bedroom, 1 bath, barely 1,000 square feet. It had a nice enclosed sunroom and two large, ancient apple trees in the back. It also sits on three acres.

I called the phone number listed in the ad and spoke to a woman. She said that she has a couple who are interested in the house, and she was supposed to meet with them this afternoon to see if they had their finances in order. She asked a bunch of questions about Tyler and was very concerned with his age and if he had a reliable source of income. I asked her to call me back when she heard from the couple.

It was around 1:00 and we hadn't heard back from her. Tyler was getting anxious, and he asked me to call her again. When I spoke to her, she said she was heading to the house and asked if we wanted to come have a look inside. Tyler went to the bank and took his money out and we drove over. The inside is dated, but Tyler loved it. We both agreed that this house would be perfect for him. Tyler talked with her a long while. She also spoke to me separately while he was having a look around. I told her that Tyler moved out of my house after turning 18, and he has been on his own every since. She was very impressed with him - that he was so young and so responsible!

She told Tyler that is was a month-to-month lease (even more perfect!), and he would be responsible for all bills including electric and propane. She said she really needed to meet with this other couple before renting the house to Tyler since she had been talking to them first. Tyler then told her that he would love to move in today, and he has all the money - in cash - with him. She looked very surprised and said "Really?? Well, in that case.....it's yours!"

We moved all his belongings out of his old house and into the new one that day. He was ecstatically happy and relieved to be out on his own. As he was gathering the last of his things from the old place, he left a note telling his roommates not to contact him because he had moved to Alaska; and with that, placed the key on the counter and closed the door behind him.

April 19, 2013

Friday April 19, 2013


Tyler called me absolutely flipping out. I'm glad he calls me when he feels like he can't handle it. I can't really explain how good that makes me feel. He could tell me he loves me 1,000 times a day, and a call from him in times of trouble would mean more to me.

His girlfriend got grounded and because of that, had a meltdown; a kicking, screaming, hysterical meltdown. In response to her overreaction, Tyler got really REALLY mad.

Apparently, he went and saw his psychiatrist and his family doctor in two separate appointments. He told his psychiatrist that he has been taking his Adderal and he also smokes a lot of weed and cigarettes. Upon much discussion, the doctor told Tyler that he will be dead at 45 if he doesn't change his lifestyle. WOW. Tyler talked to him about anti-psychotics, particularly the shot he could get once a month. The Dr. told him that meds will not help his brain function. He told Tyler that every schizophrenic will end up with a degree of brain damage whether or not they take anti-psychotics. ARE YOU FREAKING KIDDING ME????? I don't know if the Dr. actually told Ty these things or not. I have no way of knowing because he's 18, and I can't just call the Dr. up anymore. Even if the Dr. didn't say these things - that Ty will end up with brain damage so what's the point of taking meds, and he will be dead by the time he's 45 - Tyler believes he did. I am PISSED.

Anyway, Tyler thinks that because the Dr. said all these things his life is screwed, and his girlfriend is throwing a baby-like fit because she got grounded. He thinks it's so stupid to be upset over being grounded when he has to deal with all of his crap every moment of his life. He just couldn't fathom why she would be so upset. I tried to tell him part of it is just a moody teen girl thing, and she also has mood swings, so that exacerbates the problem. I tried explaining that he has to accept how upset she is and not belittle her feelings - just let her throw her fit. Different people get upset over different things, and it's not our job to try to put into perspective for them mid-fit. I advised him to discuss it with her when they were both calm.

I never know quite what to say when he's so upset that he's screaming at me over the phone for 20 minutes straight. I suggest things that will calm him down like playing with his dogs and deep breathing. Mostly I just let him vent and hopefully that will make him feel better. Although he seems crazed and talks about hurting people and doing impulsive things when he's so angry or stressed, Tyler still has the idea to call his mom. He still has his wits about him, and is able to think of me in a crisis. I am so grateful. I love this kid more than anything in the world and I would do absolutely anything for him. I think he finally believes it.

April 16, 2013

Tuesday April 16, 2013


Tyler has been off his meds for 5 months now. For the most part, he is functioning well. He lives on his own. I have to remember that; otherwise I get depressed.

Last week he came over. He was calm but very talkative. He sat on the couch talking to me for a few hours. His knees didn't jiggle. His hands were still. Only his mouth was moving.

He said that he cannot read anymore. He says he cannot go back to school because not only can he not read books, he is unable to read the news apps on his phone that he used to enjoy only a short time ago. When I asked him why, he said the words bounce all over the page. He will read and reread the same page and not comprehend what the information is about. When his roommate Sean reads an article, he understands it's about guns. When Tyler reads the same article, he thinks it's about dogs.

Tyler told me he has started messing up his words. It was very hard for him to explain, but it was more than just saying "pud muddle" when he meant to say "mud puddle", although he did that during our conversation. He knows when he is doing it. As soon as it happens, he looks at me with an exasperated expression and says, "See??" The way he explained it to me was this: take the words "watermelon" and "lifeboat". He will say "waterlife" and "boatmelon". He says he thinks the right words in his head, but his mouth doesn't say the correct thing.

Another thing he says has been happening is that when he tells a story, he will think the whole thing in his head, but only tell the beginning and skip to the end. His friends just look at him and say "huh? That doesn't make any sense. It's like you only told the end of the story."

Ty told me about last week when he was at the mall. He was with 2 friends in front of a store, and then next thing he knew, he was on the opposite end of the mall and his friends were nowhere in sight. He had to call them to find out where they were. He said it was like he blacked out and had no idea how he could walk the whole length of the mall and not remember doing it.

Tyler told me that he is scared to drive anymore. His eyes have been playing tricks on him. A few days ago, he was sitting at a red light at a four-way intersection. The lights were jumping around on him. He thought the light turned green and he started to drive. Then he saw the cars on his right start to drive in front of his car, and when he looked back to his stoplight, it was red. He is scared he will get in an accident.

During our conversation, Tyler said he's not sure of his thoughts anymore. He knows he is smart, but maybe that's the voices telling him that, and he's not really smart but dumb. He doubts his intelligence and the things he knows. He's not sure it's reality.

Throughout our talk, Tyler is receptive to my questions. He does not control the conversation like he does when he is manic. We have good back and forth. He is very scared and reaching out to me, but I do not know how to help him, or if he would even take my advice.

He really dumped a lot on me this time. I am amazed that I held it together. I didn't even cry afterward, although my heart was aching terribly. I think I buried it and maybe try to detach myself from the situation and treat him like a patient and not my son.

I did tell Tyler that he needs to exercise his brain. He reminded me that he can't read. I told him there are things on YouTube he could listen to. There are educational videos on history (which he loves) that he could listen to and learn from. As long as he's learning, it's like doing bicep curls but for his brain. After all, the brain is a muscle - the more you use it, the stronger it gets. You don't use it, you lose it. I texted him some links to the videos that Brian watches all the time called Crash Course. I think Ty would really like them.

Tyler's Decline

I haven't written very much in the past year. The reason for that is not because things haven't been happening, but because I am in nursing school. Instead of trying to recall each adverse event, I will attempt to sum up the last year.

 

Tyler graduated high school and moved out of our house. He found a friend - Sean - to move out with. They rented a crappy little single-wide trailer about 12 miles or so from our house. It was about a mile off the paved road, back in the woods. It was a good gig for him and Sean, given their ways of making supplemental income. Tyler receives Social Security - which was very easy to get by the way....I think it's because he is SO schizophrenic and everything has been very well documented by Medicaid. Tyler was approved in less than 3 months, with no questions asked. Social Security is not near enough money for one to live on, even with a roommate. I knew of Tyler's money-making ways as he bragged about it to me all the time. His 'business' grew to a point that he boasted about owning pretty much all of Northern Michigan. He would take pictures of the money and text them to me. At the end, he was making about $1,800 per day. This all came to an end when his landlord received a phone call from Tyler's neighbors. The neighbors thought there were a lot of cars coming and going from that crappy little trailer and threatened to call the police. The landlord was very angry and was going to kick the boys out. Tyler said he was done distributing, and he quit that day. Sean then proceeded to take Tyler's customers and continue business behind Tyler's back. We think Sean started to do Meth as he started being very paranoid and violent. One of Tyler's breakdowns was when he woke Sean up in the morning to tell him he was leaving for work and please take care of the dogs. Sean said, "Don't touch me! Don't talk to me! Stay the F away from me, or I'm going to come up swinging!" And that's the day Tyler moved out and hasn't spoken to any of his friends since.

 

Tyler and Sean lived together for almost a year. I didn't see him much. He came over once a week to drop off his laundry. He didn't attend family birthday parties or visit on holidays. He did come for Christmas, although he didn't stay long. The reason he gave for this is that he didn't feel comfortable at our house. He didn't feel welcome. Tyler claims that we don't really like him, and we don't really talk to him when he's over anyway. Of course, none of that is true.

 

After his high-school graduation, Tyler went to a few temporary agencies around the area. He got a job working for a company that refurbished auto parts. He stood on a line and sand-blasted parts. It was a hot and dirty job. That lasted maybe 3 weeks, then he quit. He decided at the last minute that he would try to go to college to be a history professor. I quick applied him to pell grant and got him enrolled at Northwestern Michigan College. He took a world history class and a psychology class. Seven credits were all he could handle, and he handled it very well. He went to class every day until the last few weeks, then he started to lose interest. He ended up passing his classes with awesome grades, but decided that college wasn't for him.

 

Throughout the year, Tyler has changed his mind many, many times regarding what profession he would like to pursue. He wanted to be a Supreme Court judge so he could promote anarchy on the government from within....a good idea actually, since Supreme Court judge is a lifetime job. Then changed to history professor. Next he wanted to visit monasteries in Tibet to try to find some peace in his life. He was preparing to live a celibate and mute life. He told me he would probably like it so much there, he would just become a monk. Then he decided to become a welder. He wanted to be an underwater welder and travel around the world making big bucks. Of course, I really like this idea, so offered to put him in a welding program to get certified, but he vehemently opposed that idea. No more school for him! He will NEVER go back to school. F school! I talked him into applying for Job Corps. What a great program! They will take low income people to the age of 24, teach them a trade while giving them a weekly wage! Job Corps could help Ty find a job, a place to live, and teach him how to manage his money, all this for free! He agreed to go, and the day we called Job Corp was the day they changed their phone message to say they were no longer taking applicants. I couldn't believe what luck! I googled them real quick, and sure enough they were pretty much shutting their doors and laying off hundreds of employees. Wow. Thanks a lot Obama. Glad we spent all those billions of stimulus dollars on absolutely nothing instead of teaching low-income kids how to make a living.

 

The last med Tyler tried was Zyprexa 15 mg. He took it for a few months, then decided he was going to quit all medicine cold-turkey. That was in December. I inwardly freaked out at first. Then I had my psychiatric rotation in school. I had researched Tyler's medications, but now I understood things better. The side-effects are horrible. If I had schizophrenia, I wouldn't want to take medicine either. Sedation, resting tremors that make your hands shake really bad, tardive dyskinesia, damage to the heart, slowed cognitive function. I can't blame Tyler for not wanting to take them.

 

I have been on high alert since December. It seems like Tyler has a psychotic break whenever it's finals time for me and my husband. That would be approximately every 3 months. For some reason, Tyler has a really hard time mentally beginning in late February until June. He keeps in contact with me, and I with him. He has slowly opened up to me. Since December, he has had racing thoughts. Sometimes they are so bad that he can't put words together. I know this is happening when he gives me short one-word answers. When telling a story, he will tell the beginning and the end but forget the middle so it doesn't make any sense. His short term memory is steadily declining. He easily forgets simple things like when he has a pizza in the oven, or something cooking on the stovetop. He can't use the timer on his phone as a reminder because he is so busy reading cooking directions, he forgets to set his timer. He then gets distracted while cooking, so he burns the food. He is becoming more and more paranoid. He thinks all of his friends are plotting against him and talking behind his back. Watch out if Ty starts talking about the government! He will go on hour-long tirades about how corrupt they are and how he plans on overthrowing the system. He thinks Chavez was a victim of chemical warfare instead of cancer. He thinks the Boston Marathon bombing was a government plan. Tyler told me he had a gun that an old guy sold him, but never transferred ownership to Tyler, so he can kill someone and it will never get traced back to him. That really bothered me, to say the least. I spoke to Sean about it, and he told me that it was really an air-soft gun. Tyler was forgetting to eat. There was a point where he hadn't eaten in four days. Thankfully, Sean started cooking for Tyler and was making him eat. His paranoia started to spread to food. He could no longer eat prepared food that came in a blue wrapper, or red, or green. That meant Tyler was no longer eating the  frozen burritos and chimichangas that he loves. This was big! He lived off those things! When we spoke about it, he said the food was poisoned. When I asked him how the bad guys knew which ones he was going to buy so they could poison them, he replied that they were all poisoned and his body is different from everyone else's so the poison would only affect him. I asked how he knew they were poisonous and he said sometimes the package says "If you eat this, it will kill you." He said he can eat things in a red and yellow wrapper, or blue and yellow wrapper, or green and white wrapper. He can also eat fast food if he can watch them make it. Oh man.....it became very hard to grocery shop for him. Tyler called me several times after driving around. He said the stoplights were jumping around, and he thought the light had turned green so he drove into the intersection only to have his friends tell him to stop because the light was red. He was afraid he would get into a car accident and kill people. This winter we had a lot of snow and ice. When driving alone, a hand would pull back Tyler's hoodie and whisper in his ear that his car was a piece of shit, and he was going to lose control and kill someone. Tyler can usually handle the voices okay, but he does not like to be touched; especially on the head, shoulders, and neck. He was starting to believe the voice, but more than that, the touching was freaking him out and he was afraid that would cause him to lose control. He tried not to drive alone. Tyler developed a superiority complex. He believes that everyone is incredibly dumb - so dumb that he can't stand to be around them. They are so stupid that he becomes angry at the decisions they make and he wants to hurt them to teach them a lesson. He told me that there is no one at his level of intelligence. That led him to tell me he thinks he is a demi-god. I told him that was impossible because I had never had sex with a god. He seemed to accept that, but still thinks he is far superior intellectually. Tyler has episodes of mania. He will call me and talk for hours with hardly letting me get a word in. He switches subjects around very quickly and randomly. He mostly talks about government, science, and how he hates Christians. He confabulates a lot. He tells a story and adds all these crazy details into them that I know are not true. Like how he was in a gang in Las Vegas (which is true), and he would get into fights all the time, breaking one guys arm badly, dealing cocaine and meth. He even thinks we went to jail for 9 months. He tells me now that his hands shake because he was a meth addict (not true). He also thinks I forced him to go to church, and all the kids were so mean there. Of course, they were all Christians, so now all Christians are hypocrites. He told me about the time where he went to the sunday youth group and he got up on stage and was asking all sorts of questions about how do they know Jesus was real, and how do they know there is a God, and how it's possible that he created the earth. The leaders told him they weren't going to answer his questions, and proceeded to drag him off stage and throw him out and never come back. Of course, none of that was true. When Tyler went, he did like going. He had friends there. The church - Central Christian in Las Vegas (google it. It's awesome) - was one of the most open, non-judgemental places I have ever been. The pastors there encouraged questions about everything. Tyler's voices are constant. They talk to him everyday, all day. He will not tell me what they say, except that it's not good. He sees hallucinations all the time - from things/people on the side of the road to birds flying into his windshield, to monsters in his house, to a lady holding a dead baby. She cries all the time and screams at Tyler that this is all his fault. Tyler told me that he can no longer read. The words jump around on the page, and he can't comprehend what the book is about. School is no longer an option. He can't read the news apps on his phone like 9Gag anymore. He has no friends. He has scared them all away, or so he says. I don't know what to believe. Tyler is a very sociable kid who has always made friends very easily. He is funny and quick. People flock to Tyler, and they want Ty to like them. It's always been that way, but he doesn't remember that. He is very logical, but he is second guessing everything now. Sometimes he calls me and asks if he is really smart. He thinks he tells himself that he knows things, but he can't trust himself, so maybe it's all a lie and he really knows nothing. He doesn't know if anything in his head is real anymore. He doesn't know if memories he has are true or a figment of his delusions. He asks me to tell him when he says something that is not true, but when I do, he gets explosively angry. He has agnosia - when you don't recognize the symptoms of your disease. When I tell him he is manic, he just hangs up on me after mumbling that he has stuff to do. He also has anhedonia - not able to find pleasure in anything. He is extremely indifferent to everything. He calls himself a sociopath, and I think he is kind of proud of it. He says he doesn't want to feel anything, because if he did, he would be in torment all the time.

 

Tyler has convinced his family doctor to prescribe him Adderal. At first he just wanted it to sell, but he has started taking it. This is an amphetamine that, according to textbooks, makes schizophrenia symptoms worse. His psychiatrists would never prescribe this to him. I can tell when he takes it because he is calm. He is in a good mood, and he can have a conversation with me. His legs aren't bouncing a mile a minute. He can sit still and concentrate on things. Maybe the textbooks are wrong. Maybe he has schizophrenia and ADHD. There's no textbook case when it comes to schizophrenia. Everyone has different symptoms, and everyone is affected differently. Over the past few months I think the Adderal lasts the 12 hours and he feels great. When the effect is over, he crashes and his mind goes crazy. He gets overwhelmed and ends up calling me, absolutely hysterical. And by hysterical I mean crying so hard he can hardly talk. I am the only one he can talk to. He has no one else. He doesn't know what to do. He doesn't know what to believe anymore. I get these calls all times of day and night.

 

I hate seeing him like this. I hate that every waking moment is a struggle for my precious, wonderful son. I wish I could take it away. I wish it was me instead. I would give anything to switch places with him. I have and will continue to drop everything to be at his side.

Car accident

Friday, January 25, 2013


Tyler is hellbent on moving to Washington State. That is where his best friend – also named Tyler – lives. His plan is to join Job Corps and live happily ever after. He called me up around 11:30 pm and said he was leaving for Washington right then. He wasn’t going to say goodbye to his family at all. He didn’t even think about his sister or his little brother, and how it would affect them. I convinced him to wait a few days so he could save some cash and say good bye to everyone. He agreed. My family has been praying ever since that he would not go.

I've been calling Job Corps and never getting through. Ty called this week when he was over at our house. Their phone message said that Job Corps were suspending all new applications. I looked on their facebook page and they are not taking new applicants unless they are homeless or in foster care. I don't know why, but budget cuts or something probably. That was sign number one that Someone didn’t want Tyler moving so far away.

The car accident is sign number two.

He was extremely lucky. He wasn't wearing his seatbelt. He was going 40 around a corner that he's taken a million times. He hit some ice and the car spun around, hit the plowed snow embankment sideways, and it left the ground. There was about 6 feet where the snow was not disturbed. The car happened to land flat on the slope and slide down the embankment. It should have rolled when he hit the embankment. Then it should have rolled when he hit the ground. He should have been ejected from the car from not wearing his seatbelt. God was watching over him for sure. The back windshield is shattered. The front is messed up, but all body damage. The front tire rod (that was replaced just last week) is broken.

He was really shook up, and very upset. He had his heart set on moving, and thinks he will just buy a plane ticket now, but these two things happening are making him take a pause. He still wants to move.

It's funny because the man who lives at that corner of the accident was just leaving in his truck. He saw what happened and got out to see if Ty was okay. He had Ty sit in his warm truck until Brian's dad got there, and they started talking. Ty's is the 3rd car to go over the edge in the past 2 months. Tyler asked what the guy did for a living, and he said he was a welder. Funny, cause Tyler wants to go to job corps as a welder. The man said it's a good job and he's traveled all over the country. Tyler said he was thinking about underwater welding, and the man said he did that for years.....weird, right? He said it's one of the most dangerous jobs, and the pay is excellent. He made $485 per hour. He told Tyler to go to welding school, then get his scuba certificate, maybe a Master Diver certificate, and that would be an excellent way to go.

I thought it was quite odd that Ty would get in a car accident - obviously God stalling the process of him moving. But then Ty meets this welder that has been an underwater welder......what's happening here? What direction is Ty supposed to take?

I told Ty to wait till winter is over. It was 14 below this morning. Call Job Corps, tell them he is homeless (cause he will be in WA) and see when they can get him in. Then start planning the move. I kept telling him I think it will be at least 6 months before they can get him in. Does he really want to sleep on Tyler’s couch for 6 months??

So he's depressed. His life sucks, and it just keeps getting suckier. I keep telling him that whatever he wants to do, we will help him accomplish it. He has a good support system here. He doesn't have to do things alone. We can figure everything out together. He seemed to take a little comfort in that, but mostly he just stared out into space & was unresponsive. I just think he's going to off himself. I mean, not really, but maybe.....

I'm just so anxious with everything going on in school - all the clinicals, the tons and tons and tons of homework.....tests that are impossible and the whole class fails, even when done as a group.....every single moment spent reading (which doesn't help us pass tests obviously) or writing papers.....then trying to keep Ty from moving, or trying to find a way to help make it happen....I don’t know....I told Brian this morning that I am at my tipping point. I am tired, and I am stressed to the max so he better watch out. I have been about to burst into tears all day, but too anxious to cry, if that makes sense. I am in between severe stress, which is insomnia mode, and panic stress, which is just shutting down. When I do start to cry, it's not gonna stop. I think all my hair is falling out.

May 1, 2013

Wednesday May 1, 2013 My phone rang at 5:45 am. When I answered I could hear Tyler crying hysterically. He had just left his house for his t...