Wednesday, March 7, 2012

March 7, 2012

Wednesday


We had an appointment with Tyler's psychiatrist today. He told her that his visual hallucinations are gone, and they have been for a few weeks. He still hears voices, and they are not quiet voices, but the same volume as before.

He has violent tendencies - meaning he has urges to be violent for no reason. She asked him what he does when he feels this way, and he told her that he goes to his room and lays down. He tries to fall asleep. That's pretty scary. His counselor Scott told him this past monday to stay away from violent movies. He thinks they could be a trigger for his violent tendencies and hallucinations (duh! what have I been telling him all along??). He advised Ty to watch comedies. I told him at least Scott didn't say he could only watch love movies! haha

His fidgetiness has lessened considerably, but it is still there. He says he can't concentrate on just one thing. He has to have several things going at once.

He is doing good in school. He hasn't had to call me to come get him out of class early in 2 weeks now. He is caught up with his work, and is mainly bored and can't wait to be done this June. He can't wait to get a J-O-B.

If Tyler is late on taking his medicine, or he forgets to take a dose, the effects are immediate. He feels like he is in a dream-like state. He explained is as similar to when you are really tired and driving a car, and you are looking where you are going, but you're spacing out. Suddenly you "come to" and you're like "how did I drive this far already?" I think we have all done that. Kind of like when you are seeing, but your mind is far, far away.

A few nights ago, Tyler had forgotten to take his medication. When he saw it in the bathroom the next morning, he told me, "That explains why I had a horrible night last night!" He had trouble sleeping, and he was constantly hearing voices and seeing shapes.

Tonight was the first night of taking an evening dose of 2mg of Risperidal. About half hour after he took it, he said he was seeing a dark shadow in the corner of his eye. It was shaped like a man, but he couldn't make anything out. It didn't talk, and Ty didn't try to. He kept trying to turn to look at it, but it would just disappear. So he came upstairs and told me about it, and helped me give his baby brother a bath. The shadow quit after a while.

He is a LOT better today than a few weeks ago. His temper is under control. His mood is evened out. He is staying in school. I even ripped on his friends pretty bad yesterday, and he didn't get mad! Yes, I was in a bad mood, but I was kind of testing the waters at the same time. He passed with flying colors.

March 7, 2012

 

Since Tyler's visual hallucinations have ceased, but the voices continue, Dr. Palamara has upped the Risperidone to 2mg at night, and 1mg in the morning. She also upped the Intuniv for his fidgets to from 2 to 3mg. The Lexapro is staying the same at 10mg a day, and the Cogentin in the same at .5 mg twice a day. She will reevaluate him again in 3 weeks or so, and go from there regarding getting him off of the Lexapro and possibly Cogentin. Ty says he is hungry all the time. He said he has gained a bit of weight. Dr. P told him that a side effect of Risperidone is it shuts off the "I'm full" sensor in the brain. She told him to pay attention to the time, and watch what he eats. If it's 1:00, and he just ate lunch at noon, he's probably not really hungry. This could be very bad in the long run, once he gets stabilized, because he has a fat phobia. I can see him going off his meds because he gains 10 pounds.

Tuesday, March 6, 2012

February 23, 2012

 Thursday


Tyler had an appointment with a new psychiatrist at Pine Rest today. Her name is Dr. Palamara. She was very nice, and VERY knowledgable. It was the longest appointment we have had there, lasting about 1 1/2 hours. She went through everything with Tyler - when voices started, when hallucinations started, what drugs he was doing at the times, what was going on in school, in family life, all the way to present. She went through all the depression, and his grandiose ideas, his anger and outbursts.

She is very concerned about Tyler. She hinted that she thinks he should be in a mental facility. He said they would have to drag him kicking and screaming back to one. He said that he has thoughts of hurting people. He says he sees visions, and feels the blood spatter on his face, and it feels good. He says it sick and disgusting, and he doesn't know why it is satisfying. He said he doesn't want to hurt anyone. When she asked him what things he has in place that will keep him from hurting someone, he said he has nothing. He just keeps himself in check. He doesn't let himself be violent. Then in the next breath he asks me why we are scared of him.

There was a few times where he would say something and then immediately contradict himself, and say "Does that make sense?" and we just both said no, not really. He couldn't explain why he was contradicting himself. I don't even know if he realized he was doing it.

She is worried about him completing school, and wanted to know if we had options we were thinking about to make sure he graduates this year. I told her that he can't seem to last a whole day in school, and right now I am taking it day by day. If he can't do all day this coming monday, I am going in to talk to the school counselor about his options. He really does was to finish, and he told me last night that he feels bad about himself that he can't make it. I told him that I am behind him, and I will make sure that we do everything we can to make sure he graduates, and he doesn't have to do it by himself. He felt better after that.

She said that if Tyler is bi-polar and on anti-depressants, it will cause a manic state (the past 5 days have been very, very good which scares me), and when he crashes, it will be devastating. She says his ADHD is caused by Geodon, and it's a known symptom,  and it's unacceptable, and we need to change his medication NOW. She says Geodon also causes diarrhea, which he has. He also needs to be taking all meds with about 300 calories. Without the food, the uptake is only about 60%. She is only changing meds 1 at a time so she can better pinpoint the side-effects and eliminate them. The Geodon was the most alarming, so she is changing that first. He will stay on the Intuniv, and if this new med is working, then wean him off of that, along with the Lexapro. She put him on Risperidone 1mg per day. The restless legs can be a side effect, but it usually is not one, unlike the Geodon, which usually is one.

She asked what Tyler's intentions were with seeing Dr. Barber, the family physician. Dr. Barber had told us this past tuesday that Ty needs to see Palamara for his meds until things are stable, then he can just continue to write his scrips so he won't have to go through Pine Rest. He told us that Palamara was more qualified than he, and she has more expertise. Palamara backed that up. She said that what Tyler is experiencing is not his specialty, and it could really mess things up. Good to know we are all on the same page, and one is not trying to work against the other.

She explained to Tyler how important it is for him to stay drug free. She asked him all about smoking weed, and how it made him feel. He says that when he does, his anxiety level goes way, way down. He just smiles and feels happy and relaxed. She said that is not a bad thing, but no matter how benign he thinks weed is, it is imperative that he keep his body as pure as possible while we are trying to figure out how the drugs are interacting with him. She explained all the dopamine and seratonin and how the drugs interact with the receptors, and how having anything else in his body, no matter how harmless it may seem, will have an affect on these things, esp when it's first being introduced to him. He seemed to get it. He agreed that he would not be smoking anything or taking any other medications at all. I believe him, but I will still be checking up on him like every day about drugs.

She said that when he turns 18, he will not be able to be seen at Pine Rest since it's a children's facility. He will have to find a psychiatrist for adults. She said she would set him up with one before that time comes, so we can have a smooth transition by his birthday.

I asked her about getting an MRI. She said at this point, it would not show anything. She said a brain tumor would have other side effects that he is not showing. She said that in KNOWN schizophrenics, the brain patterns can show up differently, and that doctors and scientists are just figuring this out. She said it's too early for Tyler to have anything show up and go "Yep, it's schizophrenia." In other words, an MRI is not used for diagnosis, just for studying the differences in established schizos and normal brains. At that point, I started crying, and told he I just wanted to try everything because I just don't want to accept this. I can't wrap my brain around it. I don't understand it. I don't believe it. I've just been desperate to get my son help, and this all is my last resort because I have been in denial that this can't be happening. She said she understands, and they will try everything they can to get Tyler the help and support he needs. She said it's a very difficult thing to deal with, and it's not an easy diagnosis to make.

I think all this therapy is just as much for me as it is for Tyler.

February 21, 2012

Tuesday


I got a text from Tyler today at 12:30 pm. It said "Mom can you come get me? The 12 foot man won't leave me alone and I can' handle it." Then another, "Mom I need you :(" I responded, "Did you tell him to go away? Tell him to leave you alone." Ty said, "I tried but he won't. I'm scared mom."

I picked him up from school. He said that he doesn't know why he is so tired. He said he is just so tired of dealing with this guy. The man followed him around all day, and he sat beside him on the floor in class. Ty said he didn't talk to him, but he would put his hand on Ty's shoulder, and sometimes he would put his face right in Ty's face.

On the way home, Ty kept brushing off his shoulder. The man kept putting his hand there. He was sitting in the backseat. I asked Ty if he thought he was a protector, and he told me he doesn't seem like a protector. He said he doesn't know what he wants, but he wishes he would open his f-ing mouth and say something.

Tyler is just so mentally tired of dealing with this all.

When we got home, Ty said he was going to be by me all afternoon. He is trying to sleep on the couch right now. Tyler asked me to google Dorian Gray. He said that Dorian introduced himself to him today. He's never seen him before, and he's older than the other kids at school. He said that he's not studying Dorian Gray and never has. He thought he was real until he asked the other kids if they had met him, and they said they hadn't seen him.

Tyler did end up taking a walk today. He didn't cause a scene. He wasn't mad. He just felt like the house was closing in on him, and had to get away. I hope he wasn't sneaking out to smoke weed.

We went to see Dr. Barber today, and told him everything that has happened in the past few weeks. He says that he knows Dr. Palamara (the psychiatrist), and she's real good. He said if Ty doesn't like her, that he can find him a new psychiatrist. The doc said that he won't change the meds Ty is on, because Palamara will do that, and she is more qualified than Barber. The plan is to see Palamara until we get his meds figured out, then Barber will prescribe the same meds once Ty is stable. Barber said that his nephew is a paranoid schizophrenic. He is 40 years old, and he lives a pretty normal life. If he gets off his meds, he has a hard time, so it's imperative that he stay on them, and it's lifelong. We already knew that stuff, but it was nice to hear that he has firsthand experience with schizophrenia.

February 19, 2012

 

It's been a good day from my perspective. Ty's friend Chris spent the night last night. Tyler was yelling at me in the car about getting his car back & it was getting pretty heated. Then Chris showed up and things calmed way down.

They hung out playing video games that night. Ty passed out at 10. I took Chris home this afternoon, and things went really well afterwards. Me, Brian and Asher played outside in the snow. We took him sledding down the little hill in the front. Ty came out after a while and wrestled around with Oliver, threw really hard snowballs at me. He tackled me, but got away before I could take him down. He went sledding with Asher. We didn't fight at all. He even brought up getting his car back without getting mad and causing a fight. He played with Ash a lot. He even ate dinner with the family!

I asked him if he saw anyone today, and he said Tomas, but I couldn't get any details.

He just left to spend the night at his friend Trey's house. Trey's girlfriend Hailee picked him up.

It's days like these past three days that make me think maybe there isn't anything wrong with Tyler. I think maybe he is just throwing a big fit when he doesn't get his way. Kind of like a temper trantrum, but for a 6'4", 175 pound man. I see him act normal for 3 days, and I feel so happy inside. I feel like I have my son back. This is the son I know, the boy I raised. Why can't it be like this all the time? I know he is happier - he's been in such a good mood these 3 days....isn't it his choice to act this way? Can't he see how everyone in the house is embracing him and responding in such a positive way to his behavior?

I learned once that no one can live a lie for more than 1 year. Please, God....let this all be an act. Let this be an adult temper tantrum. Let this sense of normalcy be here to stay.

The worst part of this is I know this is Tyler going through a manic like state of happy. There will be an end. There will be a crash, and it will be bad. There's nothing wrong with hoping for the best.

February 17, 2012

 

I woke up to a text today from my daughter Katrina that Tyler is staying home from school today because he doesn't feel good. 3 minutes later, he called me saying that he threw up. He hadn't taken his pills yet this morning, so that is good. I told him to take his meds with a glass of milk and go back to bed.

He spent most of the day walking around the house. He said it is was kind of a dreamy state. You heard voices off and on all day, but he could distinguish them & knew they weren't real.

Tomas followed him downstairs and asked him why he didn't talk to him anymore. Ty felt bad, even though he knows Tomas isn't real. So he started to talk to him again. Tomas has always been a good friend. Tyler keeps a journal of the things Tomas tells him. Ty told me that even though Tomas is Cuban, he thinks the white race is superior.

I want to read that journal.

February 16, 2012

Tyler remembers being at Northland with his friends. He heard a voice saying that anything in the store could be his. So he slipped a PowerAid into his pocket. He told his friend Trey that he didn't have to pay for his stuff, and not to worry about it. Trey told him  that he shouldn't do that & that's not the right thing to do. So Ty let Trey pay for it. The voice kept asking Ty what he was doing, and that if he's thirsty, he has the right to drink, so take what's rightfully his. Ty said he knows Trey is real because he can touch him, so he listened to Trey and let him pay. Then he walked out of the store.

 

February 18, 2012

Tyler woke up to a voice calling his name.  He laid in bed for a while wondering if it was a dream or not. He laid there for a while, possibly drifting in and out of sleep, but not sure if he slept or not.

He told me that maybe he's still in the hospital and just dreaming he is at home. Tyler said that Tomas told him not to cut. Tomas said that he shouldn't be damaging himself. There's much more important things to be doing.

May 1, 2013

Wednesday May 1, 2013 My phone rang at 5:45 am. When I answered I could hear Tyler crying hysterically. He had just left his house for his t...